Dercum's Disease Research
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My name is Christina and I was recently diagnosed with Dercum's Disease, aka adiposis dolorosa, aka lipomatosis dolorosa. For anyone not familiar with Dercum's it is a rare, chronic and disabling disease that causes multiple painful fatty tumors to accumulate throughout the body. These tumors can attach themselves to nerves and create a great deal of pain. There are many other symptoms that accompany this disease including extreme fatigue, weakness, swelling of the hands, skeletal pain, concentration and memory problems, fibromyalgia type symptoms and weight gain. Most patients are misdiagnosed for years with other diseases or syndromes whose symptoms mimic Dercum's, and most often people go completely undiagnosed. Currently, there is no known cause, cure or effective treatment for Dercum's Disease. To further add to this tragedy, no medical research is being done in the United States and the medical community itself is very unfamiliar with it. All treatment attempted at relieving symptoms thus far have been in vain.
At this time I am asking that all people who are currently diagnosed with Dercum's Disease, as well as their loved ones, sign a petition to urge the medical community to begin research into this baffling disease. I am hoping to raise awareness and ultimately will contact the U.S. government about our plight. Thank you for your time and support.
At this time I am asking that all people who are currently diagnosed with Dercum's Disease, as well as their loved ones, sign a petition to urge the medical community to begin research into this baffling disease. I am hoping to raise awareness and ultimately will contact the U.S. government about our plight. Thank you for your time and support.
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Goal
1,000 signatures
Goal: 1,000
Latest Signatures
13 February 2016
1000.
Ken B
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I am the husband of # 79, Melinda Baker, I know this disease first hand. My wife and the world should have research and answers for this desease, I have watched my wife suffer, and we are so blessed to have a Army Doctor/Surgeon [I am retired Navy] who no
13 February 2016
10 February 2016
9 February 2016
9 February 2016
9 February 2016
7 February 2016
6 February 2016
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2 February 2016
991.
Jade B
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I have had four Lipoma removal surgeries. Each time they are removed more grow back. They are very painful, and for awahile i began to think i was going crazy. Though i have not been diagnosed this is something i am going to bring up to my doctor. He now
28 January 2016
28 January 2016
28 January 2016
27 January 2016
987.
Vickie K
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I also think we need some research and doctors that are knowledgeable on Dercum's Disease. It has taken my life away from me, my children and grandchildren with the pain and disablilities I have.
26 January 2016
25 January 2016
17 January 2016
984.
Wendy H
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I have had DD for 5 yrs. and want it gone. I am 68 yrs old, had a terrible time finding out what I had. Dr. after Dr. was stumped and I did 100erd of test( all normal) before it was found. Now I spend my energy trying to figure out how to live with it. I
17 January 2016
15 January 2016
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6 January 2016
3 January 2016
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