Immediate access to Iplex for all ALS patients
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Iplex was originally intended for the treatment of children suffering from hormonal growth problems but also offered great benefit to people suffering from ALS (a dreadful, terminal, neurodegenerative disease to which no cure has been found so far), showing improvements in their conditions. Iplex has even been given to babies and has shown great tolerability and few side effects.
Due to business and patent considerations, Iplex, a medication consisting of the growth hormone IGF-1 and binding proteins, has been taken off the market in the United States and is thus no longer available to ALS patients. The medication supposed to replace Iplex, Increlex, does not contain the binding proteins and has not shown the benefit that Iplex provided to patients.
One and a half years ago, Italian ALS patients sued and were granted expanded access to Iplex. They are being supported by the Italian government which is financing this program, providing millions of Euros each year for their patients medication.
We, ALS patients from the United States of America and from European countries such as Sweden and Germany, demand equal access to Iplex, the only medication that has shown benefit so far. We despise the fact that ALS patients across the world are being kept exempt from a medication that might prolong their lives.
Please help us fight for your and our loved ones lives and sign this petition.
Due to business and patent considerations, Iplex, a medication consisting of the growth hormone IGF-1 and binding proteins, has been taken off the market in the United States and is thus no longer available to ALS patients. The medication supposed to replace Iplex, Increlex, does not contain the binding proteins and has not shown the benefit that Iplex provided to patients.
One and a half years ago, Italian ALS patients sued and were granted expanded access to Iplex. They are being supported by the Italian government which is financing this program, providing millions of Euros each year for their patients medication.
We, ALS patients from the United States of America and from European countries such as Sweden and Germany, demand equal access to Iplex, the only medication that has shown benefit so far. We despise the fact that ALS patients across the world are being kept exempt from a medication that might prolong their lives.
Please help us fight for your and our loved ones lives and sign this petition.
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Goal: 5,000
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985.
Josephine C
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I support this petition for all ALS patients. My name is Josephine and I am a member of www.leapforpatientsafety.org. Please visit our website and consider adding your name and comment to the "Improvement in Quality of Patient Care Petition" http://www.pe
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