HELP GET JACKIE HER EXTREME MAKEOVER HOME EDITION
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Hi my name is Jacqueline Yafanaro, I was born with a disease calledOsteogenesis Imperfecta, I have a very very severe type, my bones breakat a touch, or even just breathing makes them break. I have brokenprobably every bone in my body several times, and my heart rate is veryfast it averages out to be about 125, and that's on a good day. I alsohave a disease called hydrocephelus which is a disease where fluid isbuilt up in, and around my brain, and the only way to treat it is byhaving a shunt put into my head. I have had probably over 50 surgeries,I have rods in both my arms, and my legs to give the bones some support.As you can see I have been through more than the average 21 year old.Honestly I don't know what tomorrow will bring, the Dr's are justamazed that I have survived as long as I have. Every minute I am aliveis truly a blessing, and I'm just grateful for the time I have had, butthings are getting harder for me.I don't know how long I got left. WhenI was born the Dr's did not think I would survive past two weeks, butby the grace of God I have lived 21 years. Even though I am 21 yearsold I do not look it at all, I am only 25 inches long and only weigh atthe most 22 pounds, I cannot walk or sit up, I cannot even hold my headup on my own, I need help bathing, eating, and pretty much everythingelse you could possibly think of. Our house is very run down and small,I'm confined to my room all day because I cannot get around in awheelchair with the way things are right now. In the past five years mydisease has gotten much worse, and I have needed to be put on oxygen,the reason why I have needed to be put on oxygen is because of the factthat even though my body and bones do not grow, my organs still do, soall my organs have grown to a normal adult size but yet my body hasn't,because of that my lungs could not handle the stress of everything beingpushed on top of each other. I am adding a picture to this email togive you a better idea of what I look like. The fact is my parentshave been wonderful to me, my moms pretty much my caregiver, and doesevery single thing for me, I like to think of her as being my arms andlegs. My parents have blessed me so much, and have given me anythingand everything I could ever have asked for, but sadly I feel there isnothing I can do to repay them for everything they have done. Thesepast 1 to 2 years have been the hardest yet. Sadly this past year wenot only had to deal with all my medical issues, and deal with thepain, and struggles that my life has been, but than this past year, wealso had to go through having to watch my 3 year old cousin go throughcancer. Shockingly we also had to deal with the loss of my momsbrother. It was a huge shock to us all when he died unexpectedly. Hewas not only my moms brother but one of her best friends, and he wasonly 50 years old. We had no clue anything medically was wrong withhim. Everyone was alwaysso focused on my medical issues, and my cousins, that we never facedthat we could loose someone else. Like, I said my family has beenthrough so much this year especially my parents, they not only wentthrough all that but than they also went through financial issues. Mydad runs a small family landscaping business, and he had a buildingthat he worked out of, but ended up having to sell it because of therefinancial issues They no longer have a garage to work out of, or anyoffice space, He now has to store his equipment out of a old run downhouse, and has to do all his paper work out of a very small corner inour hallway, they call it there office I call it there hole in thewall, my mom helps my father run there business. There were many timesin the past that we thought we would loose our home. So like I havesaid, and have tried to show you, me and my family have been through somuch pain, and heart ache. I would like to just see them happy, and freeof thereworries, and cares. My moms getting older now, so its becoming harder,and harder for her to take care of me, so what I'd like to do, is blessmy parents with as much happiness as they have blessed me with, and oneof my dreams, has been to get Extreme Makeover Home Edition here, tobuild my mom, and dad a new home. As I had said above our home is notequipped for me. I stay completely flat on my back all day and allnight long every day on the floor. Most of the time at dinner, my momeither feeds me on the floor or will lay me on a table to eat. Otherthan the size of the house there are many other issues, just to namesome, the air conditioning does not work well at all, which makes mestruggle even more, the furnace is very old and in very poor condition,we are in desperate need of new heating and air system.The windows areso old that you feel the cold air coming in especially in the winterseason. The bathroom is in poor condition, especially for someone likeme. Mymom places me on a small mesh bed that lays flat inside the tub, shebathes me by bending over and getting on her knees than after shes donebathing me, theres no where else for her to put me other than laying atowel on the cold tiled floor to dry me off, this gives us both aminute to rest before carrying me back into my room. Like I said beforemy moms getting older, so as time has gone on this does get more, andmore difficult for her to do. The house is so old that the dampnesscauses centipedes to crawl around the house, which is very dangerousfor me because of the fact that mostly I lay on the floor, and when Ido see one I cannot go anywhere because I cannot walk, run or evencrawl away like the average person. We also have lots of dust aroundour house. My mom is always cleaning, mostly the reason for the dust isbecause of how bad our vents are, the air does not circulate right likea newer home would. This is just a small very small portion ofsomethings thatare wrong with our house. I could go on forever, and ever about allthe things that are wrong with our house. Besides my parents takingcare, and raising me, they also raised two other kids, who are bothmarried now. I am the baby of the family. Besides all that my parentsgave up, my brother, and sister gave up just as much, There were manytimes they had to miss certain events, and activities because I wassick. Even when my brother got married, I was sick, and my parents hadto miss practically the whole wedding, including having to leave thereception very early, because they were again busy taking care of me. Iam so thankful for the family I have, I have wonderful parents who takegreat care of me, and a wonderful brother and sister who also do allthey can to take care of me, and who have been so understanding overthe years. So I am asking you to PLEASE PLEASE PLEASE O PLEASE HELP MEGET THIS DREAM TO COME TRUE. You dont know how many people I've,emailed, and havebegged, including ABC in the past, to help me make this dream to cometrue, GOD bless Jacqueline I Yafanaro
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