Call For Action Dystonia Awareness Month
Sign Now
To the Entire Dystonia Community :
Did you know that the resources provided by the Department of Health and Human Services looks as if their list of National Health Observances for June (http://www.healthfinder.gov/nho/nho.asp#m6) does not include Dystonia Awareness Month. Do we really think that ONE week will bring about immense change in awareness. Think about it - 7 days versus 30 days.
WHY NOT ?? Call for Action...Set aside your group allegiances and let's ACT.
We are undermanned, underfunded, misunderstood, not united, full of personal agendas, and apparently our priorities need a bit of change. Sign the petition so that June can become DYSTONIA AWARENESS MONTH now.
Did you know that the resources provided by the Department of Health and Human Services looks as if their list of National Health Observances for June (http://www.healthfinder.gov/nho/nho.asp#m6) does not include Dystonia Awareness Month. Do we really think that ONE week will bring about immense change in awareness. Think about it - 7 days versus 30 days.
WHY NOT ?? Call for Action...Set aside your group allegiances and let's ACT.
We are undermanned, underfunded, misunderstood, not united, full of personal agendas, and apparently our priorities need a bit of change. Sign the petition so that June can become DYSTONIA AWARENESS MONTH now.
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Goal
99 signatures
Goal: 50
Latest Signatures
29 December 2015
99.
Steve H
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My 26 year old step daughter was just diagnosed with dystonia and prior to this we were completely unaware of dystonia. Though her muscle contractions are not as bad as some we've seen (yet) her life has changed dramatically. The general public has to bec
28 December 2015
98.
Jason D
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i've had dystonia almost 30! years! now!!!! and i feel like its been way over due to try to get the word out about it and get better treatments!
8 December 2015
9 November 2015
6 November 2015
4 October 2015
94.
Jenelle D
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I have had generalized tardive dystonia for 16 years. There are approximately 500,000 people with dystonia in North America. Please consider bringing more awareness to this devastating disorder.
24 June 2015
12 June 2015
9 June 2015
12 May 2015
1 May 2015
9 February 2015
7 February 2015
10 January 2015
23 October 2014
8 May 2014
14 March 2014
24 February 2014
21 January 2014
81.
Mellissa D
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I have been diagnosed with Generalized Dystonia, causes much pain in my daily life though I keep going like the energizer bunny to live. Please consider setting time for those of us
7 January 2014
80.
Amanda T
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mom has dystonia trying to find a dr that knows what it is and what to do to help her! we have been searching for a knowledgeable dr since 8-81-10
12 September 2013
3 September 2013
29 March 2013
27 January 2013
24 January 2013
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