Make better start funding case by case
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2 of our 5 kids we're diagnosed with a terminal medical condition called mucopolysacchardiosis 3 (mps3a/ sanfilippo syndrome) they need occupational therapy and physiotherapy to keep mobile for as long as possible but as MPS isn't a well known condition our kiddies don't get funding to cover therapy even when most of the problems common conditions covered under better start funding have the same problems as MPS but the big thing is our kiddies may not make it to there 18th birthday so I am trying to get as many signatures as I can to change better start funding to be assessed on a case by case bases thank you to everyone that signs
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