A CALL FOR ACTION: THE RECOGNITION OF MYALGIC ENCEPHALOMYELITIS AS A SERIOUS AND DEBILITATING DISEASE

"please change the name to reflect the whole disease, not just one symptom Country/State USA"

"HOW MANY PEOPLE HAVE TO LOSE THEIR LIVES? Country/State ALABAMA"

"Chronic Fatigue is a misnomer for this immunological disorder. Country/State Oregon"

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"The name of this disease has caused serious pain and hardship to patients everywhere. It has disrupted relationships, both personal and with the medical profession. It is not taken seriously. Please dignify this devastating disease with a name that gives "

"It is about time that those who deem themselves to have a greater understanding of this chronic illness stop arguing about what to call it , all the evidence from those who SUFFER from it know what it is, it is ME. To those who deem themselves to be Medic"

"4 year sufferer pls help name this disease properly Country/State NY USA"

"I have had ME for 6 years. I was an active Primary School Teacher, and now am mostly housebound. The term Chronic Fatigue is wholly inappropriate and inaccurate for the symptoms of pain, muscle weakness and neurological damage caused. Country/State UK"

"I am a ME sufferer of three years. I have had psychiatrists tell me to see neurologists and neurologists tell me to see psychiatrists. I have been poked, proded, and humiliated by the medical and insurance community as they are waiting for you to step up."

"I wholeheartedly agree! Country/State USA/VA"

"PLEASE SHOW THIS DISEASE AS THE IMPORTENCE IT DESERVES!!! Country/State Montana"

"I have seen what this disease has done to my mother and her quality of life. More has to be done! Country/State Charleston, South Carolina"