Dercum's Disease Research
My name is Christina and I was recently diagnosed with Dercum's Disease, aka adiposis dolorosa, aka lipomatosis dolorosa. For anyone not familiar with Dercum's it is a rare, chronic and disabling dise... continue reading »
"I am dealing with this disease. It has taken quite a toll on my life. I am depressed and in pain. I feel like I am losing apart of myself and I feel like I am damned if I do and damned if I dont. We really need to find the underlying cause to this painful"
"I support this petition"
"My daughter and grandsons have been diagnosed with Dercum's and are currently being treated by Dr. Karen Herbst in San Diego - their condition has not improved."
"I m also a suferer of this disease, but in my case i m nt having any pain but have gnt alot of visible swelings dat have been diagnosed as lipomas. Please if u get 2 know about any cure o treatment please let me know"
"I support this petition"
"Please help. I am a 55 year old woman responsible to raise my 11 year old grandchild. Please HELP. I can barely stand the pain sometimes. So difficult to work. I will participate in any research out there,."
"I have Dercum's Disease. Anything that ANYONE can do to relieve any of the pain would be MUCH appreciated. Let me know if I can do more than just signing this petition. I would gladly do all I could to help everyone else who has the terrible illness. Than"
"please help"
"I have a lot of lipoma's"
"I support this petition"
"Diagnosed at age 34 and both male children, ages 11 and 9, have been diagnosed and our health is declining rapidly please let me know if you need any help with this petition."
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"This is extremely painful. Help is needed NOW!"
"My husband suffers from dercums disease we also have 2 children and fully understand what you are going through, he has also had lots of surgery as well as medication and is unable to work due to the condition, I myself am frustrated with the non existenc"
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"I would like research for all forms of lipomatosis(fatty tissue tumors): for single/multiple tumors, dercums, madelung's, and any others. I have one lump which has grown steadily from a 1-cm. size, presenting with itching, to several inches now, causing m"
