Dercum's Disease Research
My name is Christina and I was recently diagnosed with Dercum's Disease, aka adiposis dolorosa, aka lipomatosis dolorosa. For anyone not familiar with Dercum's it is a rare, chronic and disabling dise... continue reading »
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"Hi just been diagnosed with this disease. Really don't now what to make of it all reading all the blogs feeling quite annoyed and confused. A lot more reading to follow. Not a 100% certain that the diagnoses is accurate. I'm not in any pain although i do "
"All the people who is suffering from Dercum's Disease and their families are in great need of good research to come up with better treatments and even better, a cure!. It is awful to have so much pain so that even the shower becoms your enemy. On top of t"
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"With so much medical genius in the US, how can we not try and pursue in finding a cure"
"WE NEED more Dr. Herbst out their --WE NEED RESEARCH FUNDS"
"I could never handle the pain my Mom endures. It's not fare that just because millions of people suffer with DD it should not be studied. Ar least there should be a way to stop the lumps and stop the pain."
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"spouse of Dercum's patient"
"Diagnosed Nov. 05"
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"I hope this gets something going on research. I would be glad to be a research participant. I am getting tired of having to explain what Dercum's Disease is to any physician I am in contact with or others in the medical profession. My life has been greatl"
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"I believe that I have this disease and faxed my doctor info. I've suffered for so long...my reation at first was relief to finally have a diagnosis and now I find myself struggling with anger and sadness at what I've been through with no help. It truly ba"
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"We need the same support in UK,"
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