Dercum's Disease Research
My name is Christina and I was recently diagnosed with Dercum's Disease, aka adiposis dolorosa, aka lipomatosis dolorosa. For anyone not familiar with Dercum's it is a rare, chronic and disabling dise... continue reading »
"From what I know, my great grandfather had the disease and his sister, both died before age 52. Back in the 1940's. Dercums passed my grandmother, all 4 sisters, so far all of my grandmothers sisters kids, it passed my dad, and I have it. So Dercums passe"
"please help God Bless"
"I support this petition"
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"Recently diagnosed - probably had for over 40 years. It is amazing that no research is being done on a disease that is probably underdiagnosed and negatively impacting so many lives! Please help!"
"Research for Dercum's Disease is needed"
"Take notice of this petition America, follow the lead that the UK has taken, and start a research study group .Please do not just attempt to "be doing something", actually do it!"
"I support this petition"
"Have had DD for 20yrs, no improvement over the years, pain killers take off the edge but only for a limited time, anybody doing research would be a move forward."
"PLEASE HELP, MY DAUGHTER HAS BEEN SUFFERING FOR YEARS WITH THIS TERRIBLE DISEASE AND IT HAS TOTALLY DISABLED HER FROM WORKING BECAUSE SHE NEVER KNOWS HOW SHE WILL FEEL FROM DAY TO DAY."
"I support this petition"
"I support this petition"
"I support this petition"
"I support this petition"
"Our loved ones need help quickly!"
"I support this petition"
"36yr old Male. DD Sufferers need to know more!!"
"I support this petition"
"I support this petition"
"Confirmed case of Dercum's Disease since 2003"
"I have dercum's."
"Research support is needed immediately to isolate medical causes, treatment oprions, and physician awareness."
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"I don't know if this is what I have, been told it is, been told it isn't. Am in pain, have had painful angio limpomas removed. Agony is a term i've come to know well. Lets do this!"
