Dercum's Disease Research
My name is Christina and I was recently diagnosed with Dercum's Disease, aka adiposis dolorosa, aka lipomatosis dolorosa. For anyone not familiar with Dercum's it is a rare, chronic and disabling dise... continue reading »
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"I have suffered from Dercum's Disease for 5 years and have had 2 surgeries to remove 10cm lipomas. More research...more info for doctors please! The pain of these lipomas is excrutiating! I also have chronic fatigue syndrome/fibromyalgia for 20 years, chr"
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"Our prayers are with you."
"This is a terrible disease and my sister has had a fast change in lifestyle because of it. It is hard to believe you can't get treatment for this. Terry has tried hard to find help. There definally needs to have research on this"
"PLEASE HELP MY MOM."
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"Fund the research. My mother has this disease and suffers with the pain every day. Research needs to begin so treatments and/or a cure can be found to help the people suffering."
"I see my future mother-in -law going through all the pain of Dercum's Disease and it can bring me to tears. I give my heart out to all the people that have been diagnosed with Dercum's."
"I have had the dosease for 3 yrs. I have been blessed with finding a doctor to help with the pain of this terrible disease. I have the medtronic pump with Prialt as the medication. I am the first in Ohio for this to be tried and I don't know if anyone els"
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"Looking for a legitimate support group"
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"Help us!"
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"I have to suffer everday in pain and been to a lot of doctors must of them didn"t even know what this condition was."
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