Vascular Anomaly Research Funding
To: The National Institute of HealthStephen C. Groft, Pharm.D., Director of Office of rare Diseases, Office of Rare DiseasesNational Institutes of Health, 6100 Executive Boulevard, Room 3B01, MSC 7518... continue reading »
"Address, City, State, Zip Code 49428 Parent No Patient No Please help our daughter"
"I support this petition"
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"Parent No Patient No As a close friend to a family with a daughter with PHACE, I witnessed the dedication of doctors, nurses, other medical professionals; but I also witnessed their frustration at the lack of information about the disease and at their in"
"I support this petition"
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"Address, City, State, Zip Code Belgium Parent No Patient No Mijn kleine meid heeft een H op haar ooglid."
"I support this petition"
"Address, City, State, Zip Code 379 wilderness acres east stroudsburg pa 18302 Parent No Patient No friend of mother's"
"Parent No My son Quinn has a complex case of PHACE Syndrome which for him includes a prenatal stroke and Autism.Please fund this research it is vital to these children."
