Vascular Anomaly Research Funding
To: The National Institute of HealthStephen C. Groft, Pharm.D., Director of Office of rare Diseases, Office of Rare DiseasesNational Institutes of Health, 6100 Executive Boulevard, Room 3B01, MSC 7518... continue reading »
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"Address, City, State, Zip Code Pep, NM Parent No Patient No Please take time to look at the faces of PHACES and then fund research for these children and their families."
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"Address, City, State, Zip Code Sault Ste Marie, Ontario, Canada Parent No Patient No grandmother of 2 year old with Phaces Syndrome"
"Parent No Patient No Thankful we can support you."
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"Address, City, State, Zip Code Ocean Springs, MS Parent No Patient No My beautiful granddaughter, Lillian, has PHACE. Information is so greatly needed for families and doctors so proper treatment can start. I challenge my family and friends to PLEASE sig"
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"Parent No Patient No Related to a PHACE Syndrome child"
"Address, City, State, Zip Code 11716 26th ST NE Lake stevens WA 98258 Parent No more funding is needed for research such as this"
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"Address, City, State, Zip Code Matthews, NC For Quinn and Elyse!"
"Address, City, State, Zip Code 49 Washington Blvd, Apt 1, Oak Park, IL 60302 Parent No Patient No It is of utmost importance that funding for research of vascular anomalies be prioritized for funding!"
"Address, City, State, Zip Code 39532 Parent No Patient No We are the world!"
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