Vascular Anomaly Research Funding
To: The National Institute of HealthStephen C. Groft, Pharm.D., Director of Office of rare Diseases, Office of Rare DiseasesNational Institutes of Health, 6100 Executive Boulevard, Room 3B01, MSC 7518... continue reading »
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"Address, City, State, Zip Code Houston TX 77096 Parent No Patient No Please fund research for this worthy cause. Research results will likely have benefit beyond this "orphan" disease. Thank you"
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"Parent No Patient No please fund research - parents need help"
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"Address, City, State, Zip Code Chicago, IL 60639 Parent No Mother to Elyse w/ PHACE Syndrome"
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"Address, City, State, Zip Code 8501 state Rt 132w, Clay, Kentucky, 42404 Parent No Patient No friend of Veronica's mother"
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"Address, City, State, Zip Code 6007 N 25th Rd, Arlington, VA Parent No Patient No Grandmother of Caitlin Rose Moncrief, who, in spite of the ravages of PHACES, taught us about joy, courage and love for almost 18 months. Her bright spirit continues to ins"
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